STEAM 组
Crohn's & Colitis Gamers CDUC Gamers
STEAM 组
Crohn's & Colitis Gamers CDUC Gamers
0
游戏中
10
在线
成立于
2013 年 12 月 31 日
语言
英语
38 条留言
Waffel Kati 2018 年 10 月 22 日 下午 6:16 
Thanks @HarleyQew c: which medications do you all take?
Ezra 2018 年 10 月 22 日 下午 5:55 
Welcome!
Waffel Kati 2018 年 10 月 22 日 下午 5:45 
Thanks @Aravix :)
Aravix 2018 年 10 月 22 日 下午 2:04 
Welcome to the group! :Khappy:
Waffel Kati 2018 年 10 月 22 日 下午 1:52 
Hi :) ulcerative colitis since 01/2018 :steamsad:
Ezra 2017 年 9 月 8 日 上午 6:21 
Hey guys! Just on Budesonide at the moment myself, at the start of the treatment roll again haha. Hope you're all doing good <3
Kitty 2017 年 9 月 7 日 上午 7:43 
That's nice, Aravix! I don't need that much medication at the moment, just some Mesalazine. Hope that lasts!

Have a nice day :steamhappy:
SMOKING BIG KUSH 2017 年 7 月 5 日 上午 11:47 
i cant stop ♥♥♥♥♥♥♥♥ my pants :steamfacepalm::steamfacepalm::terraria::steamfacepalm::steamsad:
Aravix 2017 年 6 月 13 日 下午 8:06 
All is good with me! Remicade every 6 weeks and it's still been working fine luckily. How have you been?

Hopefully everyone in the group has been feeling well lately! :Khappy:
Kitty 2017 年 6 月 13 日 下午 1:28 
How are you all? :)
Missy 2016 年 11 月 27 日 下午 12:54 
Don't know if anybody in this plays ARMA the group I play with is looking for new members. No experience is required. https://www.♥♥♥♥♥♥♥♥♥.eu/
Missy 2016 年 11 月 26 日 下午 5:36 
Aww thank you Aravix for joining my grioup it's much appericated. I was diagnosed with Crohn's before the days of social media and it was extremely isolating so I have been setting up groups on Facebook and goodreads to help fellow spoonies to connect and never feel isolated.
Aravix 2016 年 11 月 26 日 下午 2:45 
Hi Leona! Thank you so much for joining the group! I joined your group as well. Thanks for spreading awareness, and I hope that you are feeling well!
Missy 2016 年 11 月 15 日 下午 3:33 
Hello, hello joined the group a wee while ago but never posted on here until now. My name is Leona, I was born and raised in Scotland. I have had Crohn's for 17 years, dysphagia and ostomate for 8. Outside the Crohn's world I am a crafter, blogger and equestrian.
Aravix 2016 年 8 月 23 日 上午 11:27 
Hello Anna! Thank you for joining the group!
sleezing 2016 年 8 月 23 日 上午 4:39 
Hey guys! My name's Anna, I'm 22yo from Sweden. ^.^ I was diagnosed with Crohns at the age of 13, but thanks to my medication (Imurel) I am living life symptom free (atm) :) I also have a liver disease called PSC which is often connected to CD or UC. Thanks for having me in your group :D
Aravix 2016 年 7 月 2 日 上午 7:52 
Thank you for joining us Shayne!
Ezra 2016 年 6 月 16 日 上午 9:10 
*waves* hey! I know I joined this group a while back, but never introduced myself. I'm Shayne, 23 y/o girl from England! I have Crohn's (bleh). Anyone is welcome to add, lets play some gamesss! :D
Aravix 2016 年 5 月 26 日 下午 11:30 
Thanks for joining. We're excited to have you! I hope all has been well with all of you!
Kitty 2016 年 3 月 5 日 上午 6:49 
I'm excited that I found a group like this! :)
BC 2014 年 8 月 15 日 下午 6:17 
It's been awhile gang. I've been hard at work bringing a very special project to life & I'm pleased to share it with everyone today. Crohn's Awareness Project has gone live with our Indiegogo Campaign to raise funds for our fundraiser. All proceeds are going to Crohn's & Colitis Canada!

https://www.indiegogo.com/projects/a-night-of-gut-busting-laughter
räsynukkex 2014 年 6 月 3 日 上午 1:08 
Thank you about inviting me in group (happened months ago tho). I'm just too lazy and biggest problem is that I "speak" very gibberish english, so I cant tell my own experience with this nasty-ass disease. I'm from FInland and If u watch interviews about F1 driver called Mika Häkkinen, I speak kinda similar english. xD Still kinda veteran. Been married with Mr. Morbus Crohn now +18 years. My Crohn is easy, thank God! No meds needed, or surgeries.

Hugs and kisses from the strange transsexual Chron's disease hippie and high heel wanderer for everyone in this group. *KISS*

Have a nice time! More gaming, less toilet seat! Peace. ;] :d2rubick:

Another good and hilarious example of my gibberis. ^^ https://www.youtube.com/watch?v=TAGbrM-MMRk Enjoy.. :)
Aravix 2014 年 5 月 19 日 上午 11:55 
World IBD Day today! I hope all of you are doing good. Stay positive & poop well!
Aravix 2014 年 5 月 4 日 下午 4:28 
Thanks for joining!
Vegeta8300 2014 年 5 月 4 日 下午 3:34 
Awesome Group! I have some followers on my Twitch stream that are fellow Crohnies! I even got a stream to work frmo my hospital bed once :P I hope to be an active member of this group and twitter. Any questions, comments or anything, fire away. Nice to meet you all!
BC 2014 年 1 月 7 日 上午 5:23 
My Pleasure :)

Just pass the word about our Funnies
Aravix 2014 年 1 月 7 日 上午 5:19 
Thank you so much BC! You are truly awesome, good sir!
BC 2014 年 1 月 7 日 上午 5:09 
I just gave you guys a plug on my page ;) :)
BC 2014 年 1 月 7 日 上午 2:34 
Starbound is a blast :)

I also have a twitch stream if anyone is interested. www.twitch.tv/bcbotkiller007
Aravix 2014 年 1 月 6 日 下午 6:29 
I will stop by the next time you go live. I watched you play a little Starbound today, I just wasn't logged in to chat. I need to get that game, it looks really fun!

Also, thank you for joining the group!
Wynn 2014 年 1 月 6 日 下午 4:22 
Have real bad Crohn's and been stuck in my room last 10 years, so going to try and do full time stream. It's nice to know I'm not the only sick gamer hehe.

This is me http://www.twitch.tv/crohnsgamer
BC 2014 年 1 月 5 日 下午 8:39 
Yea, our domain is down right now. It's usually www.crohnsawarenessproject.com
Aravix 2014 年 1 月 5 日 下午 6:17 
That's awesome! I take it this is your website? http://bwdphoto.com/CAP/

I will be sure to like your FB page! and follow on G+
BC 2014 年 1 月 5 日 下午 5:54 
Ah yes. I run a charity called Crohn's Awareness Project :)

Cool:D:
Aravix 2014 年 1 月 5 日 下午 5:40 
I searched the community page for "crohn's" earlier and I think you appeared because you have a link in your bio that says "Crohn's Awareness Project", so I figured I would invite you.

Thanks for joining!
Wiggur 2014 年 1 月 5 日 下午 5:20 
I reckon that you were posting on Reddit, bcbotkiller.
BC 2014 年 1 月 5 日 下午 5:16 
This isn't something i would have expected to see here but thanks for the invite! How'd you gather that I have CD, did I put it in my profile?
Aravix 2014 年 1 月 5 日 下午 1:10 
Just wanted to say thank you to everyone who has joined this group so far!